Posts tagged ‘supportive care’
Patients faced with a cancer diagnosis have a lot to take in. It’s no surprise that many need help airing their concerns to their care teams. That’s why a City of Hope team developed SupportScreen, to enable patients to communicate their needs better.
Last week, the tablet-based app hit an important milestone, screening its 10,000th patient.
The achievement comes at an important time, as new accreditation standards go into effect in January 2015 from two important organizations charged with evaluating cancer care providers — the American College of Surgeons Commission on Cancer and the American Society of Clinical Oncology. The standards focus on screening for psychosocial distress, unmet needs and other psychosocial barriers to care, which SupportScreen was designed to address.
One person receives the breast cancer diagnosis, but the cancer affects the entire family.
Couples, in particular, can find the diagnosis and treatment challenging, especially if they have traditional male/female communication styles.
“Though every individual is unique, men and women often respond differently during times of stress,” said Courtney Bitz, L.C.S.W., a social worker in the Sheri & Les Biller Patient and Family Resource Center at City of Hope. “This is where men and women can learn from and build upon the strengths of their partner and work together as a team. For many couples, the cancer experience can be an opportunity to grow closer to one another.”
Bitz offers these specific and practical behavior tips. They’ve emerged from the wisdom of past patients and partners, from research and from clinical experience: » Continue Reading
Appetite loss may be common during cancer treatment, lasting throughout your therapy or only occasionally, but it can be managed.
Below are tips from the National Cancer Institute (NCI) that can help you keep your weight up and, in doing so, keep your body well-nourished. (See the end of this article for a delicious chocolate-avocado smoothie recipe that’s perfectly in line with these recommendations.) » Continue Reading
Cancer is hard enough on the immune system, and chemotherapy takes an additional toll. This double blow to the immune system means cancer patients are more likely to develop infections than people not fighting cancer.
The federal Centers for Disease Control and Prevention reports that one out of every 10 cancer patients receiving chemotherapy develops an infection that requires a hospital visit.
Sometimes, infections come from foods that people without cancer could consume with few concerns. For that reason, cancer patients or the people preparing food for them should take extra precautions when handling food. » Continue Reading
The best measure of success in the fight against cancer is in lives saved and families intact, in extra days made special simply because they exist.
Yuman Fong, M.D., chair of the Department of Surgery at City of Hope, understands what precedes that special awareness. When cancer strikes, one minute a person may feel healthy and young, he says, and in the next, they’re wondering how many years they have left.
In those situations, expertise matters. Commitment to research, knowledge of new therapies, unrelenting dedication to quality and improvement all play a role in the best possible cancer care. City of Hope has those factors. But the best measure of cancer care is cancer outcomes – and City of Hope has those, too.
Survival rates for childhood cancer have improved tremendously over the past few decades, but postcancer care hasn’t always kept up. More children than ever are now coping with long-term complications and side effects caused by their disease and treatment — one of those being learning difficulties.
A new study, published last month in the Journal of Pediatric Psychology and led by City of Hope researchers, suggests that parents can reduce the impact of cancer and cancer treatment on their children’s academic performance.
“It is possible to improve the child’s adaptive functioning in his or her daily life,” said lead author and neuropsychologist Sunita Patel, Ph.D., assistant professor in the Department of Population Sciences and Department of Supportive Care Medicine at City of Hope. “For the educational realm, parents can facilitate this by helping the child establish good study strategies and to teach the child that learning requires active engagement and effort.”
For the study, researchers analyzed the academic performance of childhood cancer survivors who had cancer treatment affecting their central nervous system. This group of survivors tends to experience long-term cognitive side effects, making it harder for them to retain information in school.
Music makes a difference – in patient mood and in patient healing. To that end, patient care at City of Hope now has a special new program called the Musicians On Call Jason Pollack Bedside Performance Program, which brings live, in-room performances to patients undergoing treatment or unable to leave their hospital beds.
As a comprehensive cancer center committed to treating the whole patient, City of Hope understands that music can lift the human spirit and enhance treatment programs. Studies have shown that live music soothes hospital patients by lowering blood pressure and reducing anxiety. For cancer patients in need of an emotional boost, soothing music or an upbeat singalong can be especially powerful. » Continue Reading
Few decisions are more important than those involving health care, and few decisions can have such lasting impact, not only on oneself but on relatives and loved ones.
Those choices, especially, should be made in advance – carefully, deliberately, free of pain and stress, and with much weighing of values and priorities. That’s the purpose of National Healthcare Decisions Day, to help people make those decisions while they’re still able to do so and then to make their wishes, or directives, known.
The alternative is, ultimately, to force distraught loved ones and well-meaning health care workers to guess at what the incapacitated you would have wanted. They don’t always get it right.
So on Wednesday, April 16, observe National Healthcare Decisions Day by assessing your values, deciding on the kind of care that you want and choosing your own way. That means creating your own advance care directives. » Continue Reading
Using a card game to make decisions about health care, especially as those decisions relate to the end of life, would seem to be a poor idea. It isn’t.
The GoWish Game makes those overwhelming, but all-important decisions not just easy, but natural. On each card of the 36-card deck is listed what seriously ill, even dying, people often say are most important to them.
- To have my family prepared for my death
- To remember personal accomplishments
- To say goodbye to important people in my life
- To maintain my dignity
- To have my family with me
- To know how my body will change
- To prevent arguments by making sure my family knows what I want
- To pray
- To die at home
- To not be connected to machines
- To be mentally aware
Dawn Gross, M.D., Ph.D., the Arthur M. Coppola Family Chair in Supportive Care Medicine at City of Hope, is a fan of the game and, more specifically, the conversations it creates among family members. » Continue Reading
A cancer diagnosis and its treatment can be overwhelming. It’s normal for patients to experience burdensome physical symptoms and psychological distress, both from their disease and from the cancer treatment. Sometimes these symptoms require specialized care in addition to primary cancer treatment.
Dawn Gross, M.D., Ph.D., the Arthur M. Coppola Family Chair in Supportive Care Medicine and chair of City’s of Hope’s Department of Supportive Care Medicine, explains that medical treatment isn’t just about a cancer directed therapy. It’s also about the total care of body, mind and spirit. The inclusion of supportive and palliative care in cancer treatment can provide patients not only with a better quality of life, but also a happier one, she says.
What is supportive and palliative care medicine?
Supportive medicine is another name often used to encompass palliative care medicine. Supportive medicine is aggressive care focused on comfort, and is designed to support patients and their families experiencing a life-altering illness. It is intended to be delivered simultaneously with all other forms of medical care. By discovering what people wish, we can deliver the care they want. In order to achieve this, we must first focus on alleviating all forms of suffering, including physical, mental and spiritual distress. This then allows for patient and family goals of care to be explored and supported. » Continue Reading