Nurses learn to confront death – and to help patients do the same

January 11, 2013 | by

For terminally ill patients and their loved ones, preparing for those final moments and to die with peace of mind is crucial. For them, "death with dignity" is no longer a vague concept. But the health-care system has traditionally been focused on delaying, if not actually ignoring, the reality that eventually must confront us all.

Now, however, health-care workers – specifically nurses – are learning how to guide patients and their caregivers through the last phase of life. They're using training developed in no small part at City of Hope.

Betty Ferrell

Betty Ferrell, Ph.D., R.N., saw a need for better end-of-life care and developed a curriculum to help nurses and other health-care professionals provide it.

This evolution in health care was highlighted this week in a cover story by The New York Times.  The article focused on work by the End-of-Life Nursing Education Consortium (ELNEC), a project led by the American Association of Colleges of Nursing and by City of Hope. The project provides nurses, educators and other health-care professionals with training that specifically addresses patients' end-of-life needs.

As the story notes:  "Spending time with the dying is not fundamental to nurse training, partly because there are not enough clinical settings to provide the experience. [The consortium] has provided training in palliative care to some 15,000 nurses and nursing instructors around the nation since 2000, focusing not just on pain management but also on how to help terminally ill patients and their families prepare for death."

Courses in the curriculum  include pain and symptom management, grief and bereavement,  legal and ethical issues, spiritual care and cultural considerations.

According to ELNEC project director Pamela Malloy, nursing schools often neglect this type of training.

"We live in a death-denying society, and that includes nursing," Malloy told The New York Times.

Betty Ferrell, Ph.D., R.N., professor in City of Hope's Division of Nursing Research and Education, led the development of the ELNEC curriculum in order to turn the tide in this knowledge gap.

"As the primary professionals at the bedside across settings, nurses play a vital role in care for the seriously ill and dying," said Ferrell, principal investigator of the project. "But nurses can't practice what they don't know — thus education for nurses is vital, and there has been important progress made in the past decade."

Since its inception in 2000, ELNEC has trained nurses in all 50 states and in 74 countries. Additionally, because ELNEC "trains the trainers," Ferrell said, the graduates can take those lessons to their respective workplaces, furthering the awareness, knowledge and practice of end-of-life care in hospitals, clinics, nursing homes and hospices.

"By empowering nurses and other health-care professionals with these skills, seriously ill patients and their families can expect and receive excellent care at the end of life," Ferrell said.

  • PeggyFioravanti

    Either way we live! Sending our loved ones Home is the ultimate test of our Faith. Our 17 year old son,Ryan, has been in Heaven since 2002 by an unlicensed driver swerving in front of our only child who was driving the speed limit, on his way to help,a group of friends, develop a program for their church. At the time he was a Christian camp counselor on his day off. Whether our time occurs quickly or it takes time as with a disease, I know we don' t go until we are called. Time doesn't change how we feel about this separation whether It is, in case,our son and my Mother. People learn to function. I live my life to the fullest everyday not just because I know my son & Mother would want me to but because I need too. My husband has complete kidney failure and when I offered a kidney, the doctors discovered that I have bone cancer. Wow! Another bump in the road of life! As if This nasty Fibermyalgia isn't enough! My husband and I are going to continue to spend everyday enjoying what we are able to while we are here. And we are looking forward to spending Eternity with our son and our loved ones who will be there when we arrive! We have choices in our lives to either use what we have to the best of our abilities or to sit around feeling sorry for ourselves, reliving yesterday and not using our gifts from God to smell the roses. Life is not easy, but then again this is earth not Heaven! I just got off the phone with one of my very best lifelong friends daughter. She has liver and pancreatic cancer. She is one of those people who all humans should be like in everyday. No one could be any better than her throughout her entire life. This is a very big bump in the road, we are going to do our best to smile as we,grow older together! Death is just the end of life here and the beginning of our lives there. Either way we live!

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